IMDSA Board Members
President - Kristy Colvin - imdsapresident@imdsa.com
National Vice President - Linette Soto - mateo2535@peoplepc.com
International Vice President - Jeremy Welch - jeremy_welch@hotmail.com
Treasurer - Mary D'Agostino - imdsatreasurer@imdsa.com
Secretary - Lisa Twomey - mosaicdownsyndrome@yahoo.com
Membership Officer - Donna Spudic - djspudic@yahoo.com
Research Officer - Kristen Lipscomb Sund - IMDSAResearch@gmail.com
Fundraising Officer - Brandy Hellard - the4hellards@yahoo.com
Fundraising Assistant - Sue Johnson
Public Relations - Position Vacant
Newsletter Editor - Stephanie Jones - slpbjones@yahoo.com
Family Connect Coordinator - Sylvia Wormley- worms62@cox.net
Family Connect Administrator - Position Vacant
Family Connect Representatives - Always Positions Available
Family Connect Representatives (Country)-
Australian Representative - Lisa Twomey
Nigerian Representative - Emmanuel Ehizome Esezobor
Bangledesh Representative - Tasneem Abedin
Portugal Representative - Teresa Paco
IMDSA Advisory Board
| Dr. Colleen Jackson-Cook, Ph,D. FACMG Virginia Commonwealth University Cytogenetics Testing Laboratory/MDS research JACKSONC@HSC.VCU.EDU |
Lauren Vanner-Nicely,MS Virginia Commonwealth University Director of Genetic Counseling Program/MDS research lvanner@hsc.vcu.edu |
|---|---|
| Blythe Crissman, MS Duke University Medical Center Medical Genetics Criss004@mc.duke.edu |
Dr. Libby Kumin, Ph.D, CCC-SLP Loyola College in Maryland Department of Speech-Language Pathology/Audiology lkumin@verizon.net |
| Dr. Len Leshin, M.D., F.A.A.P Texas Medical Association Texas Pediatric Society Dr04@ds-health.com |
Donald Swope Attorney at Law Pennsylvania dbswope@cyberia.com |
| Sharon Kaye, OT Occupational Therapist Kayefam3@comcast.net |
Cynthia Jones Special Education cynthia.jones@kenton.kyschools.us |
| Leslie Barrett, CN Certified Nutritionist ljo456@yahoo.com |